What's On My Design Wall?

Mostly applique and one block from the Block of the Month at Cabin Fever Quilt Shoppe. Calvin the cow is awaiting batting, backing and quilting. The four smaller appliques will end up in a larger quilt with 12 appliques in total; all of them are baskets. The large butterfly applique is...well, I'm not sure where it's going at this time but I had fun doing it. I'll probably add some sparkles and other embellishments to make it look more fairy-like. That's all for today.

Vicky Update and Mother's Day

Vicky is doing so well. Yesterday they removed her trach and her catheter. She's not able to walk yet so she is going to have to use a bedpan. That should spur her on. Bedpans are awful. Also, now that the trach is gone she is eating more. She still has the colostomy bag and the one drainage tube, but otherwise she is not tethered to anything. Thank you again for sending all the cards and letters. She really gets a boost when they arrive.

Mother's Day weekend in Albuquerque was fabulous. Our friends Beverly and George picked us up at the airport, because Julia and Mark had a rehearsal for the Mother's Day concert at the zoo on Sunday.

What I remember most about the weekend was the warmth and love from everyone and the good food. We went to Cold Stone Creamery twice! Mark's house has sold which is a big relief for both of them. He has to move out by June 1. Not sure where he will live yet but they will sort that out. His house sold in two weeks and he got 97% of the asking price. He and Julie did lots of work to get the house ready. It showed very well.

Julia made a delicious Mother's Day brunch and Mother's Day dinner. That means I haven't cooked since Sunday, May 4th. I have book group tonight so I may be able to extend my non-cooking streak for one more day. It's not that I don't like to cook, but it's nice to have some time off once in a while.

Today I'm getting my hair cut and colored. It's driving me crazy because it has gotten so long. That means it is covering my ears. Then I have to find time to sort through all the stuff I brought back from quilt camp and get my sewing room set up again. My friend Deborah is coming over on Friday with her sewing machine. We are going to work on all kinds of projects.

Thursday I'm going to donate platelets again. I had to take a year off because I was in a malarial zone in Costa Rica. I'm looking forward to getting back to my regular every-two-week donation.

I hope this weekend will be very quiet. We need that.

Quilt Camp Photos

Hope these photos give you an idea of what it was like inside Dobbins Hall where 53 women spent five days creating things from fabric. The top photo is of the table where I sewed. That's my sewing machine on the far right. Two ladies at my table, Margie and Pam, work at my favorite quilt shop, Cabin Fever Quilts.

The next photo shows quilt blocks on a design wall; it's just flannel affixed to a frame. For some reason the cotton fabric sticks to the flannel without aid of a pin or anything else. This quilter was placing her butterfly blocks in different places to decide how to sew the quilt together. It's called a window pane quilt; The white bars represent the window panes.

Next picture shows a black and white quilt on a design wall. The women at the table were a real hoot. I played Farkle (a dice game) with them at night. And finally a view from my sewing machine looking toward the front of the hall. I can hardly wait until next year; quilt camp is so much fun.

I'm Baaack!!!!

This is the view of Lake Tahoe from Quilt Camp. I took the picture with my cell phone. I can't write much because I have to get ready to fly to Albuquerque tomorrow morning very early. Gotta wash clothes, etc. I had a blast. Spending five days with 53 women who all love fabric is just fabulous. Rooms were wonderful including the beds, food was great and the weather was perfect. I've already signed up for next year. I'll write more when I get back from ABQ.

Blogauthor, Vicky loved your son's drawings.

Cards And Letters

Just heard from Vicky; she got five cards this morning and is overjoyed that so many people who don't even know her care enough to send a card. They came from blogauthor, creamy silver, Rondi, Lucina, and Susan. Thank you, thank you, thank you. She explained to her nurse why her last name is not on any of the cards. I'm not sure her nurse knows much about blogging but she said she would let the mail room know to watch out for cards with the room number and only a first name.

I've packed all the stuff I'm taking to camp; it looks like I'm leaving for good. I'm even taking my chair for sewing. I didn't do than for Jamboree day and found myself in a very uncomfortable position. My little Prius is going to be jam-packed. Weather.com predicts isolated thunderstorms and a high of 60 where I'm going today.

The one thing I haven't packed yet is my clothes. I can do that in a minute. Shows what's important for this trip.

We had a thunderstorm last night which is a real rarity here. Sort of nice to hear the rumbles. They get a lot of those in the mountains when it's warm, but they rarely make there way here. Our weather comes from the west not the east.

I'll try to find a computer to keep up with all of your lives but if you don't here from me just know I'm in fabric heaven.

Quilt Camp Scenery

This is Zephyr Cove on the south short of Lake Tahoe. It's actually in Nevada. The steps you can see in the picture are the amphitheater at the camp which is called Zephyr Point Presbyterian Conference Center. Maybe we will congregate there and sing "Kumbaya." It's still pretty cool there (about 32 at night and low 60s during the day). The room that we will sew in overlooks the lake. I am so excited.

Fava Beans

Aren't they just the ugliest things you've ever seen? I bought some yesterday at the first farmers' market of the year. I talked to my brother about them; as a vegan I thought he would have cooked just about every vegetable there is. Well, he hasn't cooked fava beans. Go figure, I'm actually cooking a vegetable before he does and I'm not a vegan.

A little on-line research got me a couple of recipes. I'm going to make the easiest one with lots of garlic, a bit of fennel and olive oil. Any thing cooked in garlic and olive oil will taste good. And I like the mild anise flavor of fennel.

I'm also going to make portobello mushrooms stuffed with fresh pork sausage and chopped leeks. I'm leaving for a week so I want him to eat well before I leave.

I love the farmers' market. Week after next we are going to start getting our box of vegetables from a nearby organic farm, The Natural Trading Company. You sign up to buy a share of what they produce. I bought a small box for us. Delivery starts next week and runs every week through October. I figure it's a great way to learn about new vegetables. The fava beans came from this farm's booth at the market so we will probably be getting more of them.

Change of subject: my sister needs to work on her small muscle control in her hands so she is going to crochet something. I found a very simple pattern for her on line yesterday. I e-mailed it to hubby; he will print it out and take it to the hospital today along with her crochet hooks and yarn. She has crocheted before but never after her hands had been immobile for so long. She's also starting to set goals for herself, which is a great sign.

Yesterday she took three steps. She had a walker and two physical therapists there to make sure she didn't fall but she did it and was very proud. She told me she is resigned to the fact that she will probably be at Regency through the summer.

Lots Of Good Stuff Happening

I know it's not fair to show a picture of a beautiful sunny day in California complete with pool and swimmer while many of you are still freezing. I can't help myself. This was the view from our room in San Luis Obispo where we went for the North Meets South Porsche 356 group. There were 175 restored 356s. Kerry was in heaven.

I, on the other hand, found out about a huge quilt show just around the corner from our hotel. So both of us were in heaven.

I met a wonderful woman at the quilt show who showed me a better and easier way to applique. I bought some of her patterns; this week I have been happily working on one of them using her technique. I had tried needleturn applique before but just couldn't make it work. Her technique, however, solved the problems I had been having. That's what I love about life; when you are open to people you make amazing discoveries.

My sister is doing quite well considering what she has been through. Her emotional state seems to me like post traumatic stress syndrome, which doesn't surprise me. There is a wonderful psychiatrist and a great chaplain there. I met both when I was there. They have been very supportive of her.

Vicky and I talk every morning, which is wonderful. Sometimes it's just a few minutes but then yesterday we talked for an hour. They removed the catheter for her dialysis which is a very good sign that her kidneys are working. The trach is still in her throat even though she's pretty much breathing without aid of oxygen. A couple of nights ago her oxygen level dropped to 88% so they put the oxygen cannula back in her nose for a short while.

On Tuesday she went back to Methodist Hospital for a CAT scan to see how her belly is healing and to see if they could remove the drainage tubes. The tubes stayed in; she goes back next Tuesday for another CAT scan. Getting those drainage tubes out would make it easier for her to be more mobile.

I can tell she's doing better because she's getting bored and has decided to set goals for herself. That's a really good sign.

She received her first blogger card; it came from Rhonda (thank you, thank you, thank you). She cried when she thought about someone caring enough to send a card to a person she has never met.

The Farmers' Market in Lincoln opens today and I will be there. It's going to be from 8-12 every Friday for the rest of the year. Love that locally grown stuff; plus the guy we buy meat from will be there.

Monday I head for Quilt Camp at Lake Tahoe. I can hardly wait. That's all for now. Once again, thank you for all your support for my sister. It means a lot to my family.

My Sister Needs Your Help

Right now she is sad, depressed, anxious, angry, worried and just plain pissed off at the world. The other day she asked me, "why did this happen to me?" She was sobbing when she asked. So here's my thought.

Could you send her a card, a note, a postcard or anything else. She's not able to use her computer because her fingers don't quite work right at the moment. It might help if you could let her know that you have been following her terrible journey. You can just sign it with your blogger name or just say someone who reads your sister's blog. I know this won't take away much of her worry and angst but it might at least get a smile out of her.

Her address now can protect her anonymity, because you don't have to use her last name. So you can send greetings to her at:

Vicky
Room 231
Regency Hospital
1300 Hidden Lakes Parkway
Golden Valley, MN 55422

Thank you so much for whatever you are able to do.

Here's My Appliqued Cow

I still have to add one more border to get the piece to it's final size of 20 x 30 inches. Don't know yet what the fabric will be but I'm thinking some kind of checkerboard pattern. I haven't named him yet. Any ideas? He was a lot of fun to make. So it's a good sewing day in my neighborhood.

Tomorrow we are driving to San Luis Obispo, which is about 5-1/2 hours down the coast. Kerry's Porsche club is having it's annual North Meets South gathering. There will be lots of folks from both ends of the state driving old 356 Porsche. We are taking the Prius. Kerry's Porsche isn't quite ready for the open road and it's definitely not ready for a long drive. The people who belong to this club are a lot of fun.

I've identified some quilt shops in the area that I definitely want to visit.

More on the mother of the groom outfit; I think I've found a dressmaker who may be able to do it. I ordered the pattern so when it gets here I'm going to meet with her. The samples of her work on her web site are stunning. Check out her site at http://www.kimscouture.com/
She works from patterns or she will design a one-of-a-kind outfit.

We get back from San Luis Obispo on Sunday night. Then it's only one more week until quilt camp. Yippee!

Lots Of Projects Underway

I have not left the property since last Friday. This is an all time record for me. I'm very proud of this record. I needed some down time.

I'm going to have to leave today; I'm meeting some women friends for a drink. We call ourselves WOW...Women of Wine. It's a pretty casual group; we meet at a local Italian restaurant, drink wine and talk.

Most of my time at home has been spent working on various fabric projects. My design wall has lots of stuff on it. The blocks on the left are for the Block of the Month group at one quilt shop. The blocks on the right are for the Block of the Month for another quilt shop. And the applique blocks in the middle are another Block of the Month group. Block of the month is an easy and inexpensive way to get enough blocks for a quilt. These blocks will end up making three different quilts. The group of blocks on the right is closest to finishing.

I'm really enjoying doing the applique blocks. It's like painting a picture using pieces of fabric. Plus I'm finding all kinds of ways to embellish the applique. Our applique teacher is a purist so frowns on embellishments; nobody really listens to this, because everyone is having so much fun finding things to add to each block.

The lime green fabric lying on my desk with the two long white legs is a wall hanging I'm making. It's a wild and weird looking cow on green fabric. The background has three kinds of green fabric including one that has the logo for John Deere tractors (found that in Minnesota, naturally). It's primarily applique. I'll take a picture when it's done.

So, time to go create and work on the body of the cow. Life is great and Vicky is doing very well. They are talking about removing the trach. When it comes out, they bandage the hole and let it heal from the inside out. Then she can start eating real food and have that awful nose tube removed. She has not eaten since Feb. 6th; her weight is down nearly 40 pounds. That's an awful way to lose weight.

Vicky Bulletin

She is no longer on dialysis. Her urine output is good enough for now. That's a very big step. Over the weekend they had her breathing on her own without any oxygen. Yippee!!!!

Some Thoughts On Vicky And The Wedding

I've been posting about Vicky for so long that I've forgotten how to say anything about the rest of my life.

First Vicky; she moved to her own room at the acute care facility after she had gone through four days of assessment by the medical staff. That's a big step. This week Neil will meet with the staff to go over the treatment program they have developed for her. That probably won't happen until Thursday. I asked Neil to take notes so he could tell me everything. Maybe they will even have a copy of the program for him.

But now, back to me. I've been thinking a lot about what I'm going to wear to Mark and Julia's wedding. I hate trying on clothes; it's not fun when you are not a perfect size anything.

So I finally decided to look at some patterns to see if I could find anything that would work for me and my body. This is from the Vogue pattern book. I sent the photo to Julia and her mom. So far I've gotten a thumbs up from Julia.

I'm thinking about a celery green for the pants and then something with celery green and white for the top. I like the sort of see-through part of the top. I will probably do the pants in a crepe. The pattern says the blouse is an organza.

Now I just have to find a dressmaker. Luckily I have time to interview a few and get references. So what do you all think? It will also work for the two nights on the Christmas cruise where we have to dress up. I'm also thinking of a celery-colored shawl that I could do some bead work on to dress it up a bit. I don't know why I'm so hooked on celery at the moment. I hate it as a vegetable and will do anything to avoid it; don't serve me Waldorf salad!

These Are Kerry's Sprongs

Spring, Sprong, Sprang

You probably think that I have not had much of a life since my sister got sick. You would be right on many fronts, but I did discover two things while we were in Minneapolis: Sprongs (pictured here) and a fabric outlet that sells Dupione silk at $7 a yard. Both are fabulous buys. I won't bore you with information about the silk. It's just plain fabulous.

The shoes are called Sprongs. Made by Z-Coil -- http://www.zcoil.com/ --,which is a company in Albuquerque, NM. The guy who invented it was a runner who experienced all the usual aches and pains from this sport. I know they look weird, but trust me they are so comfortable. This shoe accomodates my very wide foot. The tension of the springs depends on the weight of the person and how they walk. Normally I would have taken a medium spring, but because I strike on my heel and role forward, I take a light.

We first saw these shoes on some of the nurses in the ICU. These people are on their feet constantly so good support is essential. During this last visit we asked where they got them. They sent us to a nearby store called "Sprongs." We discovered that it is owned by a mother and daughter. They sell these shoes plus fantastic jewelry and very creative purses. I was skeptical about the shoes but tried them on and was won over. You can replace the z-coil about every 500 miles or if you detect wear on the heel part. You can order the replacement on line and then just screw it in.

So these are my sandals for the summer. I always get a new pair each year. I couldn't figure out how to get rid of the "regular" and "wide" stuff when I stole the photo from the web site.

Today did not go exactly as I had hoped. Vicky is doing very well physically, but today she was delirious and having hallucinations. Turns out a blood test yesterday showed that she had a very elevated thyroid (300); I don't know what that number means, but I spent a fair amount of time with the hospital psychiatrist talking about it. I was impressed by his interest in her brain. Everyone has been so focused on her lungs, kidneys, stomach, etc.

He wanted to know if her thyroid had been high before. All I knew is that she had complained about gaining weight even thought she was dieting. That's another symptom of hypothyroidism. My only knowledge of that is Emily, my late Golden Retriever. She had hypothyroidism.

They are giving her meds to counteract the high thyroid count but the impact of them is cumulative so it will be a while until we see any change in her behavior.

It was hard for me to believe that the person I talked to yesterday was just not there today.
It was hard for me to leave, but I do feel like the psychiatrist will be her advocate and that is comforting.

We did have some wonderful experiences today. We watched a butterfly emerge from its chrysalis. At first Kerry and I thought it was just part of the bark of a tree, but then it started to move it's wings in the sunlight. Meanwhile down below the tree the Juncos were stirring up the dirt to find seeds. It was a nice way to counteract what was happening upstairs in Vicky's room.

The other experience is the free lunch at the hospital. It's sort of like going through the cafeteria when I was in grade school. The ladies wear hairnets and serve from a steam table. Today's menu: barbecued riblets (could have fooled me; they looked like those Vienna sausage cut in half), cooked carrots, mashed potatoes, salad, cream of broccoli soup and banana cake with white frosting. All of this is free. There are also soft drinks and coffee. The Minnesota seasoning is on all tables: ketchup.

You know how cops get free coffee in a lot of places, well the mail people and UPS/Fedex drivers stop at the hospital for lunch each day.

So we are home now; it was a long flight. Right now it's 1:30 a.m. but even though I'm tired I still want to do some research on hypothyroidism.

So that's the new from Lake Woebegon. It was very hard to leave her.

Vicky's move to the acute care facility yesterday went very well. She had physical therapy at Methodist Hospital in the morning and left the ICU about noon.

When Kerry and I got there a little after 1 she was raring to go; she wanted to know when her program to make her better was going to start. She was a bit disappointed that they had to do a day-long assessment before anything would start.

She was a lot more lucid than I expected. When she's tired, so is her brain. Right now she's in the Special Care Unit, which is sort of like an ICU. She will probably go to her own room on Thursday.

She was talking a blue streak yesterday. I guess she's trying to catch up. After all, she didn't say much for about seven weeks.

Yesterday she asked me if she almost died. I said, yes. That was the end of that discussion.

All of her vitals were good without use of the ventilator.

Kerry and I fly home tonight; I would love to stay and watch her progress, but we have company coming on Saturday night, and I have a quilt applique class on Friday morning. It is easier to leave when I know she is so much better and has made it out of the ICU. No going backward now.

The ICU nurses want to see her again when she can walk in under her own power with a big smile on her face.

She's Going To Acute Care On Income Tax Day

Vicky is scheduled to go back to the acute care facility tomorrow about noon. She has met all the criteria; the draining of the ugly stuff really helped. Her white cell count is normal. Yippee.

She was lucid when I got there about 12:30 today; but it was pretty much down hill after that. When she gets tired so do the synapses in her brain. She got especially angry at Neil and threw him out about 5 so we left and went home and had dinner at a reasonable hour.

I made something I hadn't made in ages. I dipped the chicken parts in raw egg and then rolled them in Panko which is a Japanese bread crumb. Bake it plus yams and then added a sauce made up of apricot jam and Dijon mustard warmed on the stove. Add coleslaw and it was a pretty decent dinner.

Great News

Less than 24 hours after the removal of all that puss and blood that had accumulated around her spleen, her white cell count was down to 12,000 from 25,000. The doctor said that the antibiotics couldn't get to the source of the infection. They are still doing a culture to make sure she is on the right antibiotic but it's pretty clear to me that they found the source of it all. If her temperature stays normal, she doesn't require any blood pressure medication and she continues to do well off the vent, then she can go to Regency this week. I don't think it will happen while we are here but it will happen sooner rather than later.

She was very tired yesterday. They did have her in a chair for two hours in the morning but then her butt started to hurt so they put her back to bed. She was a lot more lucid than she had been Saturday night. Even commented on the color of my blouse; she said it was a good color for me.

I'm going back to the fabric outlet we visited last week. They have some amazing prices on dupione silk so I'm going to buy some. That's my reward for all the hours in the hospital. I think it was good for Neil to have stayed home yesterday. He's at work right now, Vicky is having dialysis and Kerry is asleep. The coffee is ready so I'm off to get something warm for my tummy. Again, thank you; your prayers, positive energy and good thoughts mean a lot to the family.

A Pretty Good Day

We sang happy birthday to Vicky around 2 p.m. yesterday. She was awake and smiling. The room was jammed with people, which probably means we broke all the ICU rules but no one seemed to care.

The best part, however, was the fact that she got to have the device on her trach that allows her to be heard when she talks. The respiratory technician said he didn't think he could get one for her. I played on his guilt by saying it was her birthday and it would be so great if we could hear what she had to say on this important day. I also promised birthday cake. A short time later he told us she had the device on and could talk. What a great present.

When she was asleep we went into one of the family rooms to have cake and soda or pop as it's called here.

They finally took her for the CAT scan at 5:40 p.m. rather than 11 a.m. She wasn't gone long but they were able to drain 80 ccs of junk from the area around her spleen and they put in a drainage tube on each side of her belly to take more stuff out as it accumulates. The stuff they took out has gone to be cultured. We should know something by Monday afternoon at the latest. I hope this will help them get the right antibiotic for her. Then her infection will go away along with her fever and she can transfer back to acute care at Regency.

She wasn't nearly as lucid after the procedure. As always she asked to go home. I told her she wasn't well enough and she asked, "well then where will I sleep tonight?" Her brain is good some times and other times it's just very confused. The nurse was going to give her something to help her sleep.

Today Neil is going to stay home and get ready for our hot dog roast tonight. When Vicky and I were growing up we always roasted hot dogs in the family room fireplace on Sunday night during the winter. We also had baked beans and potato chips. So Neils going to gather all that good stuff so we can have another Sunday night hot dog roast. Afterall there is still snow on the ground so it must be winter. There is nothing better than a hot dog roasted over an open fire. The good part is the roasting sticks we will use came from our dad's house, so they are the ones we used as kids.

Kerry and I will have hospital duty today so I'd better get ready. Thank you again for all your prayers, good energy and positive thoughts.

Today Is My Sister's Birthday

For those of us who know how perilously close to death she came, it's also a celebration of her struggle to survive and surmount odds that were not in her favor. It may be bigger than her 60th birthday next year.

We are taking a sheet cake (store bought..no I'm not baking) to the ICU staff so they can enjoy it in their break room. We will bring another cake to Vicky's room for the family to have. No candles, but we can bring Mylar balloons.

Yesterday was a good day for her. She was much more lucid than the day before. Dialysis was first up, and she finished that without any problems. Then we had the best gift; they put the oxygen dome over the trach in her throat and turned off the ventilator. She was breathing on her own. We left at 7 last night and she had been breathing on her own for five hours.

I spent a lot of time yesterday educating her nurses on the importance of giving her the anxiety medication on time. They were quite late on a dose and poor Vicky suffered for it. Yesterday I spent some time telling her about all the machines around her. Don't know if any of it stuck but I think it's less fearsome when she knows those things. I also read her the numbers off the monitor, particularly when she was off the vent. I'd read her heart rate, blood pressure, oxygen level and number of breaths per minute. Then I would tell her that those were perfect numbers, which they were.

The doctors and Neil met to talk about the spinal tap and decided against it for now. Instead they are going to aspirate some of the liquid in her belly that has accumulated around her spleen. In the search for the cause of her on again/off again fever plus high white cell count (25,000 yesterday) they believe that liquid might be the source. They want to get some of it, culture it and then see if they can determine a better course of antibiotics. That's happening this morning at 11 a.m.

It's still cold and miserable here; there's still snow on the ground and the wind is blowing. Vicky's son Adam has been working near Duluth; he barely made it home yesterday due to blizzarding conditions. Adam told me that Lake Superior and the Duluth area are called the "Norwegian Riviera." That's probably another Ole and Lena joke. Those jokes are quite popular here with the folks who have spent their lives in the cold Midwest.

Well, I'm going to go scramble some eggs for the men and then head to the store to get supplies for the party. Thank you once again for all your prayers and good thoughts. You are wonderful, caring people. We wouldn't be where we are without you.

Another Rock and Roll Day

Today it rained, snowed, sleeted and the wind blew like the dickens. Kerry got a real taste of Minnesota winter in April...and the reason I decided to leave the state for good in March 1968.

We had highs and lows today. The highs: her blood pressure and oxygen level are great. She is breathing much slower than yesterday.

The lows: her anxiety attacks take a huge bite out of her life. They are finally giving her atavan and dilaudid on a regular basis to manage the attacks rather than dealing with them after they happen. Those attacks are brought on by coughing which causes the pressure to change on the vent which sets off alarms. Then the nurse suctions the vent; she doesn't like that at all.

The EEG and MRI results are in; both are worse than they were last time. The neurologist, Dr. Fred Taylor (I like him because he carries a black bag like the doctors of old carried when they made house calls) said her brain is functioning very slowly. He talked about her cortex, which is the stuff that looks like cottage cheese. He doesn't know why. He has recommended a spinal tap or as they call it, a lumbar puncture. He says she isn't critical and her platelet count is good so the risk is low. That will be done tomorrow.

The troubling part is that her temperature is normal but her white cell count is even higher than the 19,000 yesterday. At some point they may have to do a bone marrow test to find out why.

Today the ICU doctor was talking about getting ready to transfer her back to the critical care facility. The neurologist seemed pretty surprised by that. They did have her sit in a chair today for nearly an hour. She also got her hair washed. I think she really liked that. The EEG people had put a bunch of gunk in her hair for the test. Of course they didn't stick around to clean her hair afterward.

So, I have no idea what tomorrow will bring. I do like the fact that people talk about her as non-critical. That is wonderful. Meanwhile we are planning her birthday party in ICU. There will be a cake and Mylar balloons but no lighting of candles (oxygen in the area could ignite the whole ICU). So that's it for today. I'm exhausted but feel good about being able to comfort her.

Another Curve Ball

Just as we landed in Minneapolis yesterday, Neil got a call that Vicky had had a seizure. It wasn't the shaking kind, it was the type where she just was gone for about 5 minutes. Luckily one of her doctors was checking on her when it happened. Otherwise we might not have known what was going on. The neurologist came to see us. She had an EEG yesterday and is having an MRI as I write. She's back on the vent so getting her to and into the MRI is not easy. They may decided to do a spinal tap although the neurologist said that would be his last thing to try because every time you put a hole, even a teeny tiny one, you risk more infection.

The strange thing is that her temperature is normal but her white cell count as of yesterday morning was 19,000. A high normal count for you and I would be 11,000. He said normally you would think of cancer but not with what has happened to her. He kept using the word "sepsis."

She opened her eyes and smiled when she saw me. Her anxiety level is way over the top. She can't talk right now because she is on the vent, but I could read her lips, "I want to go home." I wish I could just climb into her bed and hold her but there are far to many tubes and lines to make that possible.

I discovered that putting my hand on the top of her head near her forehead and holding her hand is comforting to her. Then I tell her that she is safe. Usually she falls asleep in a few minutes. I'm glad she is awake, but it is so hard to look into those beseeching eyes and know I can't do what she wants.

She has been coughing on the vent which sets off alarms and then the nurse comes in to suction her out. She hates this. Yesterday her face turned all red; I thought she was going to spring out of the bed with anxiety while they were suctioning her. The respiratory therapist said that Vicky pinched her when she did it a bit earlier.

Her heart rate is still in the low 120s and they are having trouble maintaining her blood pressure due to the Atavan they are giving her for anxiety. Her oxygen level, however, is 100 percent. That is great.

So we are heading to the hospital in a little bit. She has the MRI and dialysis this morning so we don't want to get there too early. She is usually pretty tired after dialysis. They tried to do it yesterday, but about an hour into it her numbers started going down so they stopped. Her urine output is about 10 ccs an hour, which is better than the 10 ccs a day she was doing. Also, the color is better.

My job today is to wash her hearing aide mold and get it back in her ear. Neil tried yesterday but couldn't get it in; we could tell he were hurting her. I talked to my brother last night. He wears a hearing aide in addition to his cochlear implant. He told me to put a small bit of Vaseline in her ear so it will slip in easier. I'm going to try that today when she's awake.

It's supposed to snow today. In fact they are predicting a blizzard. Mother Nature obviously doesn't know it's April 10.

Lump Is Nothing To Worry About

As far as I know the lump on her liver is nothing; at least that's what the ultrasound people told Neil. Her temperature is coming down and so is her heart rate. Her heart rate is still pretty scary to me.

Kerry and I fly to Minneapolis tomorrow for a week long visit that includes her birthday on Saturday, April 12. She will be 59. There were a few days in the past month when I didn't think she would see 59.

She is still in the Methodist Hospital ICU; no date to take her back to acute care.

Found out from my brother that the acute care facility used to be the Glenwood Hills Psychiatric Hospital. Our mother spent a fair number of days there; her demons would overcome her and my brother and sister would have her committed until they could find our father who was always away on business trips when these demons arrived in her head. I was busy living my life in various places; all of them outside of Minnesota so never visited Glenwood Hills.

Richard says the place has been fixed up a lot; the one part they didn't change he said is a beautiful room off a garden and lake. That was the last place he saw our mother alive. She killed herself the day after she got out of Glenwood Hills the last time. That was 33 years ago.

The heart quilt I made is her birthday gift. I'm hoping we can hang it on the wall of the ICU and then the acute care facility.

Pictures From My Garden

Not Good News

Vicky is back at Methodist Hospital ICU after just two days at the acute care facility. Yesterday her heart rate shot up to 140 and her white cell count was very high also. The acute care facility made the call that she needed to go back to the hospital. It was the right decision.

Last night they did a CAT scan and MRI. This morning we found out they saw a lump on her liver. They will do an ultrasound today or tomorrow to get a better look at it.

The whole family is feeling pretty discouraged. This is a giant step backward. Keep praying and doing anything else that will send her positive energy. She really needs it now.

Her Physical Health Is Good....

Vicky has been at the acute care facility for about a day. My brother is visiting this weekend so I was able to get his report on how she is doing. He echoed what I had been hearing from Neil. She is very confused, doesn't always understand why she's where she is and is very anxious.

She recognized our brother this morning but then later in the day asked who he was. Worst of all she asked my brother who the other man was; it was her husband.

Today she was breathing on her own; they closed up the trach with a little thing sort of like a cork. She could speak through her mouth rather than through the amplifier they had on the trach. She does not have any IVs, which is fabulous and she can move her arms. When she needs meds they are either given by injection or orally through her nasal tube.

Big event tomorrow is having her sit up on the edge of the bed and dangle her feet. I hope they hold on to her because she tried to escape once before.

My brother says it's much harder to be with her when she is awake. Today she asked about people who have been dead for more than 25 years. When told they were dead she said she remembered that.

I really want to be there with her, but I'm worried about how to deal with some really hard stuff. I'm considering bringing some family pictures so we can talk about them. I want to find a way to have a dialogue, limited though it may be, with her rather than just re-identifying who I am.

Once again, Kerry will be there to help me through this process. Vicky really likes him so I'm hoping she will recognize him.

Vicky, At Long Last, Has Left The ICU

Here's a note from Neil:

Hi everyone,

Last night, Dr. Marino gave me the good news that Vicky can be moved to Regency, the acute care facility. This morning, I got the call from the social worker at Methodist Hospital that it will happen around noon (CDT). She will have spent 58 days in the hospital, 53 days in ICU. She has been very anxious to leave the last couple of days.

I will let you know how the move goes. Thank you all for your prayers, well wishes and help (food).

Love, Neil

It's Never Too Early To Plan....

For Christmas. This is the cruise ship (Holland American Lines Oosterdam) we will board on Dec. 27th in San Diego for a glorious week of sun and fun on the Mexican Riviera (Puerto Vallarta, Mazatlan and Cabo San Lucas). Kerry's sister found the cruise and a great price ($1400 per person) and we get a balcony. She is an excellent shopper. His part of the family will all be there.

The last cruise I took was in 1974. I was married to my ex-husband. I'm not sure how we ended up on the cruise, but it left from Miami and cruised some great spots in the Caribbean, well except for Haiti. I think we were the youngest people on the cruise by about 30 years. There was a priest at our table. Not sure how he got there.


Last Christmas we talked about doing something really different in 2008. Kerry's nephew and his wife were in Cancun; we all said, why aren't we there too?

I have been to all of the cities on the cruise just not on a cruise ship. Doesn't matter, I will enjoy it all and bring along my Imodium AD and Cipro just in case. In fact my ex-husband and I spent our first honeymoon in Mazatlan. He got really sick. The second time I married him (slow learner) we honeymooned in Cabo San Lucas.

Now Kerry and I will be able to enjoy the wonderful cruise and the places we will stop. I woke up this morning not even thinking about Christmas and here I am writing about a cruise. Just shows you never know what the day will bring. That's the great thing about life.

Vicky's Choice...And The Answer Is...

Today was sort of a milestone for Vicky. She got to taste something; notice I didn't say drink something. At first she requested V-8 juice, which is something she drinks at work. I was happy to hear that she remembered what she drank at work. But then she decided on Diet Coke. Neil bought some, put a bit on a sponge and rubbed it around her lips. He did that three times. Each time her tongue wiped the liquid clean and she tasted something for the first time in nearly eight weeks.

Now the question for all of you is; after nearly eight weeks without tasting anything, what would you have requested? No need to be serious about this. I think a pomegranate martini would be at the top of my list.

She did very well with her breathing today; she also demonstrated how much she wants out of the ICU. She was in her chair after dialysis and she managed to undo the seat belt and was trying to get out of the chair. That would have been a disaster. Luckily one of the nurses looked in on her and thought that doesn't look right; Vicky did not pass go and did not collect $200, she went back to bed. I love to see this determination from her.

I'm not sure I understand the bleeding thing that Neil wrote about last night. Surgery and radiology conferred and decided they didn't need to do surgery. No shit Sherlock; I won't let those folks open her up a fourth time. They took her off the heparin, which should help, and are going to put something in a main artery to catch a clot should it break loose. That's my non-medical understanding.

A Small Step Backward

Another message from Neil:

I was hoping to let you all know that Vicky had been transferred to Regency hospital, but she is still at Methodist. She had a low grade fever on Friday so the doctors didn't want to move her until they could bring that down with antibiotics. I did not see her on Saturday as I came down with some kind of stomach bug.

According to her nurses, Vicky threw up on Saturday afternoon. They stopped her nose feeding and placed a drain line in her nose instead. She had a CT scan today as her stomach felt firmer and they found she had a pocket of blood collecting between her stomach and her stoma. This caused her intestines to stop and back up into her stomach.

She was very tired when I saw her today. She had been breathing with the tracheotomy dome most of the day, has a good heart beat and blood pressure plus her fever is gone. So we have one more delay.

The doctor on duty today thinks that she should be better by the end of the week. Everyone in the ICU wants to see her go because she has been a miracle in the making.

Again, I want to thank you all for your prayers and good wishes.

Love, Neil

She Didn't Get Transferred Yesterday

She had a low-grade fever so the hospital didn't want to release her.

This is a picture of my wonderful sister with our brother, Richard. It was taken in Albuquerque three years ago when the family gathered to celebrate my 60th birthday.

I thought you should have a picture of the person for whom you have been praying. She still needs those prayers.

Once again yesterday she was mad as hell. She wants to go home and doesn't understand why Neil won't take her there. I think we are seeing some of the brain damage the doctors told us she has. I hate the fact that she has brain damage; she deserves so much more than what has happened to her.

She had dialysis yesterday, which really tires her out, so luckily she slept a lot of the rest of the day. We will see just how mad she is over the weekend.

They will try for a transfer on Monday.

The Beginning Of My Latest Creation

The pattern is called "twisted bargello." I took a class about ten days ago to learn how to do this type of quilt. Once I got started I just had to keep going until I finished this part. There are 20 fabrics and 1,751 pieces in this quilt top. The smallest piece is 3/4 inch by 1.5 inches.

I still need to add two borders. I'm going to Cabin Fever Quilt Shoppe tomorrow to have them help me pick out those fabrics. I want something quite plain so they don't distract from the main part of the quilt.

These are the colors in our bedroom. Once it's finished, it will hang on the wall directly behind our bed. That wall has been blank for nearly five years. Every time I walk in the room I think, that spot needs something. I didn't want anything heavy there that would fall on us during the night; a quilt is light and perfect.

I have lots of other projects so I'm on to the next one.

Great News About Vicky

A note from Vicky's husband Neil:

Hi everyone:

The weeks have passed by with Vicky in the hospital. Last week, as the sedatives wore off, she opened her eyes. She was still glazed over and it took another week for her to realize where she was. On Good Friday, she tried to talk, but with the respirator in her throat, she could not make any sound. She has run the gambit of joy and sadness as she has become aware of her situation. On Saturday and Sunday, she got to sit in a special chair and had some breathing test to help her get off the respirator. It made for a great Easter, thus our miracle. I greatly believe that all of the many prayers said on her behalf have been answered.

Today, I got great news from Dr. Moreno, her ICU doctor. She is well enough to be transfer to Regency Hospital, where she will receive respiratory and physical therapy. Regency is in Golden Valley, behind the Courage Center. It is a small hospital, only two floors, that specializes in acute care. The average stay is around 35 days. They can do dialysis and they also have an ICU unit. They can handle most medical emergencies, should they occur. The best thing is that they have free parking, something unheard of nowadays. She will be transferred on Friday, March 28, after 45 days in ICU and52 days at Methodist Hospital.

I will be with Vicky all day on Friday and will let you all know how she is after the transfer.

Keep your prayers and good thoughts coming.

Love, Neil

Introducing The Kitten

I have no idea how old she is or where she came from, but here she is in all of her black and white glory.

She Sat In A Chair Yesterday

Yes, it's true. The chair was a recliner that could accommodate all of the stuff that pokes into and out of her. The chair flattens out right next to her bed and then they move all the linens, tubes and Vicky directly to the chair. Then they moved her to a more upright position.

She tolerated sitting very well although she had to be propped up with lots of pillows. She was also off the ventilator twice yesterday. She is too weak to squeeze Neil's hand.

Today they are going to attach something to the tracheotomy so she can talk. That will be a huge relief because Neil says she is mouthing words but he doesn't read lips. My brother does but he's back home in Evergreen, CO. Neil did understand one question she mouthed "How long?" He assumed she meant how long has she been in ICU. When he told her she cried. Breaks my heart to hear this.

Today she will have another echocardiogram and some kind of look at her esophagus. Her temperature is back to normal after giving her antibiotics.

Still no date to move her to Long Term Acute Care. She has been accepted at the facility closest to Neil's house.

Meanwhile Kitten Vicky is surviving but wobbly. The feedings during the night brought back memories of how tired I was when Mark was still feeding every four hours round the clock. Right now she is in a sling I fashioned out of a shawl. She seems calmer when she's close to me.

Thank you Dykewife for the tip on getting a kitten to pee and poop. It worked. I never would have thought of it. If you are wondering what it is, just read Dykewife's comment on my blog from Saturday.

We celebrate Easter in sort of a different way. Saturday is the horseshoe tournament at our neighbors Kevin and Vicky. Sunday is brunch at our other neighbors Richard and Hillary.

But we had a special treat today when we got home from Vicky and Kevin's, we discovered a very young kitten (oxymoron) in our driveway. We have lots of feral cats in the area. So today one of the babies of a feral cat found our driveway and refused to accept anything but unconditional help from us.

I've never cared for a kitten who probably had not been weaned. It was too late to go to PetSmart to get the kitten milk so we made do with half and half with water warmed to a nice mother-type temperature. We also built a den for the kitty that included a heating pad under a bunch of towels.

I will be up at two hour intervals tonight to feed her; yes I think it's a girl. I found some old syringes (minus the needles) that we used with our late Golden Retriever Emily. They are great for feeding teeny tiny kittens.

Tomorrow I'm off to PetSmart to get the kitten formula. It seems sort of right to have a new baby when the rest of life seems intent on taking away life. My sister is still doing okay; she loved rescuing cats so I'm sure she would love this one too. I think I'll name her Vicky. Our two cats were really curious about the new kitty. They wanted to climb into her den but I wasn't sure what they would do.

So I'll be mothering all night. I just want her alive in the morning. She is a noisy little thing.

Not A Great Day

Just heard from Vicky's husband; news is not great. She has brain damage from lack of oxygen, she has blood clots in both legs and she has an infection of some kind that is causing a fever in the 100-101 range.

I had been thinking about the brain damage thing; don't know why. I do know that in some of the darkest moments the CO2 level in her blood was very high. Brains don't need CO2; they need oxygen. The brain damage may be why she is not responding to people now that she is awake. According to Neil the doctors think this can be fixed in therapy; I take that to mean that they can teach another part of her brain to do what the damaged part did. Don't know for sure.

The blood clots have me worried too. Her lungs could not handle having those clots move upward in her body. She is on heparin (Creamy Silver: I guess some people can get it) to clear the clots.

There is some good news: she is making more urine, the new way they are doing dialysis (three times a week for four hours each time) is working; she seems to be trying to form words but with the vent she cannot speak; and when the nurses were re-arranging pillows to move her into another position, she lifted her right arm to help them.

Tomorrow her son Mike is bringing grandbaby Max up to see her. If anything will impact her it will be seeing Max. She adores him.

So don't stop praying. It's not over yet.

A Good Question From A Favorite Blogger

"How are you?" That was from Creamy Silver. I was taken aback at first and then I realized that she had asked an important question. I have been so focused on my sister's well being that I have sublimated my own health and welfare. Our parents have been dead for a long time so I think of myself as the matriarch of the family. There is a lot of responsibility that goes with that, at least in my mind.

The short answer is that I'm okay; the long answer is that I think about her all the time. The good part is I had a great dream last night where she was sitting up in bed talking to me. That was far better than the dream the night before when I was trying to board a flight to London and couldn't find the gate. I hate those kind of dreams.

To take care of myself I have immersed myself in Kerry and in quilting. I had an all-day quilting class last Friday and Saturday. On Sunday Kerry and I went to a quilt show in a neighboring county. The woman taking our money looked at Kerry, then looked at me and said, "would he be here without you?" I said no and she said then I will only charge you for one person. Quilters are wonderful. They lost out on $6 but they knew they would have lost out on that if he hadn't come. I promised to buy him lunch; we ate at Red Robin (it was Yuba City after all; the one decent restaurant in town, City Cafe, is closed on Sundays).

I have not gotten my hair cut or colored. I thought I would do that right away but somehow it doesn't seem important. It's spring here which is great for my spirit.

I'm working on a quilt called "Twisted Bargello." You need 1,715 squares for the quilt. It's not as torturous as it sounds but it does take some concentration.

My badge of honor as a quilter was acquired on Sunday at the quilt show. I now have my scissors attached to me with one of those cords that reels in and out. I'm always looking for my scissors so this really helps.

The one thing I haven't done yet for myself is get back on the treadmill. I need to do that for my lungs, heart and blood pressure. I tried today but my lungs would not cooperate.

Anyway, that's the best I can do on taking care of myself. Thanks Creamy Silver for asking.

More Good News; It's Boring But I Love It

A report from Neil.

A number of milestones were reached today.

1. She breathed on her own with pressure support from the respirator for 8 hours; she had physical therapy at the same time. She did not like the leg lifts.

2. She is off the continuous dialysis. The renal (kidney) doctors will put a new cathetor in her on Wednesday and will start her on regular dialysis. She will have this 3 times a week for about 4 hours at a time.

3. She is going to be recommended for transitional care. She will be checked on either Tuesday or Wednesday and be recommended to go to Regency in Golden Valley or Bethesda in St. Paul. These hospitals partner with Methodist to take patients that need respiratory and physical therapy.

She has been opening her eyes and has winced some when she feels pain. These are good signs. I expect that more breathing exercises will be done over the next couple of days. All of the staff at Methodist ICU are just thrilled at her recovery.

Thank you all for your prayers.

Love, Neil

Another News Flash

Today they took Vicky off the ventilator for short periods of time and she seemed to breath on her own pretty well. They will continue to do that for short periods so they can finally get her off the thing. Her eyes were open a lot today so they put in her hearing aid in which they had placed new batteries. Neil said he stood right over her and his his most stentorian voice said her name and his. No response. She is still pretty heavily sedated. One of the nurses said she smiled last night. Making lots of drool which they suction out of her mouth. She doesn't like that and bites down on the tube.

Dr. Sue Ravenscraft, who is the Director of ICU, came by as Neil was leaving tonight. She commented on how strong Vicky is. That is an understatement. Despite their attempts to inadvertently kill her, she is still alive. You go girl!

Late Breaking Bulletin

She opened her eyes. They were glazed but open. The pain killer she's on, Propofol, allows some awareness at the same time keeping her pain level down. Stay tuned for the next bulletin.

How Many Ways Can You Say "Good News"

More good news from the ICU. Doctors removed her final chest tube today and nothing bad happened. Her vent setting is down to 35% oxygen plus the rhythm of her setting has changed to a more normal breathing just like you would have if you were asleep, which she still is. With all these changes her blood gases remained normal. The Versed is totally gone and they have reduced the Propifol slightly.

Nothing much will happen over the weekend. She has two nurses that she has had many times: Kent at night and Lori during the day.

Neil thinks they may wake her up next week. I hope so.

The nurses told us that they had seen miracles; people who never should have made it out of ICU come back to thank them for the good care. Vicky is a miracle and so is the prednisone that made that miracle possible.

Once again Neil wants me to tell all of you how much he appreciates your positive energy, prayers, Reiki and anything else you are sending.

I had a quilting class today where I learned a Korean way of folding fabric called Chopkey. Tomorrow I'm taking another class called "Twisted Bargello." Gotta make up for two weeks of not quilting.

Sunday I'm going to a quilt show in a neighboring county. Life is good.

Good News Again

Just heard from Neil. Vicky is down to 1 mg of Versed and has her vent adjusted to 40% oxygen. Tomorrow the final chest tube will come out. The renal doc says her kidneys have a 75-80% chance of recovering. I wish it was 100% but I'll take what we can get.

Neil went to the auto show today, which was great. He needs to take care of himself by doing things that please him. He promised me he would stay healthy.

That's all for tonight. I'm in quilt classes for the next two days. That's how I take care of myself. Tonight we are having stew in the crock pot. Yummy.

A Good News Bulletin About Vicky

From Neil:

"Today was another good day. The Versed sedative, a derivative of Valium, has been turned down to 2 mg/hr and Vicky has been displaying good vitals. The doctors removed one of the chest tubes from around her lungs. This was put in weeks ago to vent air that was leaking from her lungs. The lungs have sealed up and there is no air build up in her chest cavity. They will clamp off the other tube tomorrow and, if there are no problems, remove it on Friday. Dr. Ravenscroft was very happy at her progress and Dr. Willis (the surgeon) observed her wound as it was being redressed this afternoon.

I also met one of the social workers who will be helpful when Vicky moves on from the ICU.

Heidi (our cousin) visited with me and we had a good talk.

As good as the results have been, our girl has a ways to go yet. Dr. Ravenscroft wants to get some better numbers on the respirator before Vicky is awakened. I can only hope that by next week she will be looking at us and then freak out when she is told what has happened to her over the last 5 weeks.
Thank you all for your love and support. It has been a great comfort to me."

Food Glorious Food

Nothing to report on Vicky. She is still making progress, but slowly.

So I'm switching topics. I watched a lot of HGTV and the Food Network while I was in Minneapolis. Both channels are sort of soothing and mind numbing. Neil would retire to his bedroom to watch what he wanted.

Anyway, one day Adam (Vicky and Neil's son and my nephew) and I were watching Paula Dean on the Food Network. I love to listen to her talk. But this episode she made something that was so over the top I just had to write about it: deep-fried Mac and Cheese. I'm not kidding. The recipe is on her web site. To make this dish even fattier. She wraps each square of Mac and Cheese in bacon which she secures with a toothpick. Then she rolls it in flour, egg, and bread crumb. Then it's into a deep fryer filled with peanut oil for about three minutes.

At this point Adam and I were drooling. It looked so good. I stole the picture from her web site. Adam is going to culinary school in the fall so he's really a foodie. He makes the most amazing meatloaf.

I'm feeling almost back to normal. I went out today and bought some fabric for a class I'm taking on Saturday. I went to the grocery store; then decided I was too tired to tackle the library. I came home and napped for two hours.

Neil is still doing what I did...sitting in the ICU. It is so stressful. I didn't fully realize that until I wasn't there. I have quilting classes all day Friday and Saturday. Then I will figure out when to return to Vicky's room in the ICU.

A Good Bulletin Just In From ICU

I just got this from Vicky's husband:

"Vicky has had another good day. The Versed sedative has been turned down to 6 mg and she seems to be handling it well. Everything else today was routine. Dr. Willis (the surgeon) came in to look at her stomach wound and says that it looks good and is healing properly. Erin, the pregnant nurse with the spring heel shoes, took care of Vicky this afternoon and told me that Dr. Ravenscroft will be trying to remove one of the chest tubes on Wednesday. That's the short and sweet of it."

I Came Home To Spring

These are not the exact flowers blooming outside my sewing room window, but they are as close to the color of my Gerbera Daisies as I could get. My daffodils are nearly all in bloom. Tiny buds are showing on the trees and every flowering tree in the area is in bloom. Nice way to come home. It's going to be 73 today.

Vicky had an uneventful day yesterday. She is tolerating the slow removal of the Versed which is good. She tried to breathe over her ventilator a couple of times but the nurse just increased her Propofol (pain med) and she stopped.

The head of ICU came to see us yesterday to talk about what she wants to do next: remove Vicky's chest tubes if there are no more leaks; tweak the vent settings to see if she can do more on her own and discontinue the continuous dialysis in favor of three times a week. The latter depends on her blood pressure staying stable. Apparently the dialysis is playing a role in that. Yesterday she again made more urine on her own so we are hopeful.

Once the Versed is gone from her body they will put in her hearing aids and see if she can follow some simple commands. I did see her eye lids flutter a couple of times yesterday. She's in there. Also, she is tolerating being moved.

The doctors are stunned by her recovery. According to her chest x-ray she should not be doing this well. They have decided to stop using the chest x-ray as a determinant in her treatment. They would like to do a CAT scan, but it just isn't possible to get her to the CAT scan right now even though it's on the same floor as ICU. She doesn't like to be bagged and they would have to do that for quite a while to do the scan.

I realized once again last night how much I hate to fly. I was in a middle seat on a completely full flight. Got to bed about 1 a.m. PDT which is 3 a.m. CDT. I'm going back to bed. I have my book group tonight so gotta get some rest.

No Post This Evening

At 9:15 CDT I will be sitting in seat 14B on a non-stop Northwest flight to Sacramento. We are going to the hospital in a bit and then Neil will take me to the airport about 7.

We have heard nothing from the hospital to indicate that she has worsened. I'll post tomorrow. Thank you again for all your support. It means a lot to the family.

Today Was A Really Good Day

The doctors are astounded by her progress. They said that steroids are not supposed to work in these cases. That's the only change they made.

She is off the paralytic; blood pressure meds are gone, vent is down to 55, they have her on a new pain med and are weaning her off the versed she has been on. Versed (accent on the second syllable) is a powerful drug that is often used on patients in ICU who are on ventilators. It relaxes them so the vent can do it's job. It also causes amnesia so she won't remember anything that has happened. Her blood Ph is 7.2 and her CO2 level is down to 74 from a high of 125.

She should be off the versed totally by Wednesday afternoon. Then they want to see if she can follow simple commands. Her husband will have to be there for that because she is hearing impaired. Even with her hearing aids in her ears she will do better hearing his voice which is very deep and loud.

Last Tuesday I really thought she would be dead by now. She is by no means out of the woods. We don't know how effective her lungs will be in transferring oxygen to her blood and her kidneys are still barely functioning.

But the fact that one of those poles that they hang bags of medicine on is gone from her room is proof to me that we have hope. They also removed the EEG monitor from her forehead and the screen for that is gone as well. Now that she's not on the paralytics we don't have to worry about her being under medicated for pain.

I'm going home tomorrow night feeling a whole lot better than I did when I arrived nearly two weeks ago.

Again, thank you for all your prayers, Reiki and energy. We would not be where we are without all of you.

It's Almost Boring

Even though things are going well, I still have this feeling in my gut every time a doctor walks by or a machine beeps. She is doing well. I won't bore you with the stats. She just seems to be tolerating whatever they do.

The sad news in ICU today was the death of a 44-year-old woman. She died of complications of the flu. Her teenage son looked so sad. I'm amazed that while all this sadness is happening, the staff continues to care for the rest of the patients. I guess you have to do that to work there.

Her nurse last night, Kevin, reorganized all the poles on which her meds hang. This means that we can approach her from either side of the bed. Also it makes the whole scene look less foreboding.

My brother goes home Sunday afternoon and I go home Monday night. Of course, all of this could change in a heart beat, but for now I feel calmer.

The family came for dinner tonight. I made pot roast in the slow cooker. Lots of folks had seconds. And grand baby Max at my leftover Mac and Cheese. Made me so happy.

My brother and I went to Whole Foods so he could get some vegan things to eat for dinner. We also bought fresh guacamole and chips but then forgot it in our cart after buying his vegan stuff.
But I did get to finish his vinegar and salt kettle chips because when he read the ingredients he found out that they had lactose in them. Vegans don't eat lactose. Score one for the non-vegans.

That's all for tonight. My brother is at the hospital early tomorrow because he has an afternoon flight. We will probably get there in the early afternoon. I haven't had any Imodium since Thursday so I guess I must be doing better mentally.

Thank you again for all your prayers, Reiki and energy. It is most definitely helping.

Another Uneventful Day

Her numbers were good today: vent turned down to 70%, oxygen level at 97%, blood pressure good, weaning her slowly off the paralytic drug, making more urine on her own and she tolerated having another central line put in plus being moved.

The additional central line was needed so they can do blood tests. The flaw in all of this, which is a big flaw, is that her CO2 levels are still in the 80s pretty much unchanged over the past few days. She is tolerating the feeding which means she's getting some highly concentrated nutrition plus amino acids to help heal her wound.

I'm hoping we are seeing the impact of the steroids.

One of our cousins, Chris, came to visit her. Unfortunately my brother and I weren't there. I'm sure it was a shock to see her like this. I wish we had been there to help him see what is happening. But now he knows where she is so hopefully he and his siblings will stop by occasionally. It's just good to know that she has someone there from time to time.

I'm feeling much better thanks to the Imodium AD. Nothing like letting the nutrition stay in your body for a while.

So, keep those prayers, good thoughts and Reiki coming. There is a tiny ray of hope, and we are clinging to it for all we are worth.

Another Uneventful Day For Vicky

Nothing good or bad happened today. She just remained stable. The lung doctor said that we would know in 24-48 hours if the prednisone would do anything. I sort of wish he hadn't given it a time frame. Now I'm fixated on Sunday.

It's great to have my brother here. He brought me lunch today from Whole Foods. He's a vegan so it was an eclectic mixture. A vegan cordon bleu (weird but tasty), a raw golden beet salad (yuck) and a spinach, garlic clove, raisin and pine nut salad (yummy) and two raspberry chocolate vegan cupcakes (delicious). He has promised lunch tomorrow, without the beets.

I think I'm becoming an ICU junky. The newspaper reporter in me just can't stand not to know what is happening around me. The biggest news today was the woman next door to Vicky who arrived via helicopter on the roof. She came from Redwood Falls, MN. No idea what happened but she doesn't look good.

Max, Mike and Minna visited today. Little Max (nearly three) really lights up the place. He has cars that are characters from the movie "Cars." He and his dad know a lot of the dialogue and act out scenes from the movie. I think the nurses enjoyed the lighter moments when Max was there.

When Max leaves he looks at Vicky and says, "Nana go night night." Sort of breaks my heart.

Went out for Thai food tonight. I think it was Neil's first Thai food ever. So now he's eaten butternut squash and Thai food while I'm here. We are moving his taste buds forward one step at a time.

Adam (Neil and Vicky's youngest son) comes home tomorrow night from the Duluth area where he's painting. It will be nice to have him here.

I finally got my Imodium AD and am feeling much better. That's all the news from Lake Wobegon.

Blissfully Boring Except For My Stomach

My stomach seems to know long before I do what my mental status is. I need to buy some Imodium AD. Okay, that was pretty graphic but it's what life is like right now.

The good thing today is that nothing happened; it was neither good nor bad. This morning the herd of doctors descended on her room. They would probably be offended by the "herd" comment, but it's true. The docs decided to put her on steroids. We have nothing to lose. Of course, then her blood pressure was out of whack but we knew that was going to happen so they turned up her blood pressure meds.

She is tolerating being physically turned, at least for now. The challenge now is that any statement I make at this moment in time could be cancelled out by whatever electrical impulse she has.

Our brother arrived today which is really helpful. He can't stay with us because he's allergic to cats. He's over at cousin Dennis' house. And tonight Neil's brother Tom arrived and stayed after we left. That was really wonderful. It's not easy to be in that room but he knew that his brother needed him to be there.

The kindness of people both here and in the Ethernet goes a long ways toward making this tolerable. I thank all of you; keep praying. I need to get some rest.

A Very Hard Day

Things are not looking good here. Today the lung doctor, her husband and I had what they call a "care conference." That's where you discuss what to do if she codes. Neil is such an optimist; I know it was so hard for him to hear what the doctor had to say. He agreed to a do not resuscitate (DNR).

They are having trouble controlling just about everything. She is so fragile that just moving her in the bed to prevent pressure sores sets off all the alarms.

The problem is really with her lungs. They are just not working very well; about 35%, which is way too little.

So we need even more prayers than you have been sending. My brother is arriving tomorrow about noon.

To compound all this sadness I found out tonight that a dear friend of ours committed suicide. I was speechless when I found out. The sheriff's possee found him in the woods about 300 yards from the house he and his wife shared. They are wonderful people. Margo, his wife, is devastated. She is a breast cancer survivor. I have no idea why this happened. Then a wonderful woman from my Red Hat group died this week as well.

What is wrong with the universe. I wish the news was better but it's not. No one has given up but we are worried that Vicky does not have anymore strength to continue to fight.

Another Day In The ICU

Tomorrow night will be the end of Vicky's third week in the ICU. Not something I want to celebrate, but I am glad she is still with us.

Today was another good day. The herd of doctors descended on her room about noon to look appropriately serious and gloomy. I've decided that this is how most male doctors look. They decided to return her respirator to the setting it was on before surgery; this is a big deal because it is less hard on her lungs. She's also down to 70% oxygen from 100%.

She tolerated the change very well. Her blood gasses continue to be good, her blood is no longer acidic and her CO2 level continues to drop. Even her glucose tests have been good so no insulin today.

I had to sign a consent form for them to move her feeding tube deeper into her gut so it's right near the entrance to her small intestines. She had been throwing up some of what she was being fed. She needs the nutrition so this will do the trick. They brought in this huge machine (a fluoroscope) to guide the process of getting the tube into the right place. Kerry and I stepped out. Besides I don't think there was space for us in her room. The dietitian came by and suggested a change in nutrition to something that has amino acids that will speed her wound recovery. That will start tomorrow about noon.

It's amazing how many specialists are caring for her. She has a respiratory therapist, a physical therapist, an acute care dietitian, a renal doctor, a lung doctor, her original surgeon, ICU nurses, radiologists and many more. She doesn't know anything about any of this. But her family is very thankful for all of them.

Her blood pressure is stabilized with very little medication. Her heart rate and BP are good.

You may be bored by all these stats but I'm not; I love the fact that some of her readings are normal.

It was sort of slow in the ICU today but the nurses said as we were leaving that the 3rd floor where they have the telemetry patients (aka heart surgery patients) is full so many of them will come to the ICU. Vicky's nurse Kent said that ICU nurses don't like these kind of patients. "They want us to fetch for them when they turn on their light," said Kent. "We are not that kind of nurse." I laughed. It's always good to laugh in the ICU.

Kerry goes home tomorrow night. I have a flight set for a week from today. That, of course, is still tentative.

One person died last night in the ICU. I knew something was up when the whole family was there around her bed last night as we left; everyone looked really sad. I think it was a grandma who came in unconscious on a ventilator. This morning her bed was empty. There is very little space between life and death.

We still have too much food but we did find out that the wonderful soup that Theresa made has MSG in it so I can't have it. She is such a sweetheart; she's making another batch that I can eat. I just wish they would stop sending the desserts.

Time for more leftover Mac and Cheese. Thank you again for all your support.

Another Stable Day In The ICU

We went in a bit later this morning and discovered that her blood gas levels were up once again. Her CO2 is still declining, which is very good. Her heart rate is down to about 95. It had been as high as 115. Her oxygen level is good with the ventilator set at 90%. She had gotten down to 50% before her last surgery. We hope she can get back to that level. They are taking about a half-pound of fluid out of her each day with the dialysis. She's actually below the weight at which she came into the hospital.

Today they added yet another bag; this time it's phosphorous. The nurse told me what it did but I don't remember. They also have a monitor on her forehead to check for brain activity so they can make sure she is sedated enough. Because she is paralyzed they want to make sure she is comfortable because she couldn't tell us if she wasn't.

We went to Mike and Minna's house for a great spaghetti dinner tonight. We toasted Vicky at the start of dinner. We are home now and stuffed. Kerry is leaving on Tuesday evening. I will probably stay another week. Just can't be away from her right now. I want to continue to see slow but steady progress. Then I'll feel like I can leave.

Once again, Neil wants me to thank all of your for your continued prayers, energy and caring. It means a lot to all of us. We got another care package of food from people at Vicky's work; great homemade chicken wild rice soup, lettuce, Parker house rolls and then, are you read for this, apple pie, French Silk Pie and cinnamon streusal coffee cake. Yikes, Neil is going to have to roll me on the plain. I'm glad he can take this stuff to work where people there will devour it.

She's Stable

It was a roller coaster ride today that ended with good news and stability. The surgery she had on Wednesday really knocked her for a loop; it has taken her a while to recover but the good news is that she is.

I'm eating leftover Mac and Cheese (made from scratch) and having a glass of chardonnay (okay two glasses), but I've earned them.

My sister is amazingly strong. Somewhere inside her quiet body she is busy fighting this. Neil and I both spent time holding her hand and talking to her.

It's amazing and scary how you can become so used to all the beeps in the room. The dialysis machine is constantly beeping. A bag needs emptying or refilling or they just need to test to make sure it's working right. The redundancy's are very calming for me.

Dr. Hamm spoke with us this morning. Very attractive but very skinny. I found out from Vicky's day nurse that she is a triathlete. Probably helps relieve her stress level.

Vicky had an echo sonogram of her legs to look for blood clots and an echo cardiogram of her heart. Both were clear. That is a relief.

Back to the hospital tomorrow morning. We found out we can get a reduced parking rate because she has been in the hospital for so long. That will be nice. It will be $4 per day rather than $10 and you can go in and out as much as you want for the $4.

I know I'm not going home on Tuesday. I don't know what Kerry plans yet. The good news is that his last blood test showed his platelets at 37,000. We cheer for anything over 30,000. That's all the news on this Saturday night.